Monday, November 12, 2007

Monday, November 12th

Finally some good news! Finally!
Well, Kelly had surgery today and it went well. Before they started the surgery, the doctors reviewed a Plan A, which is the one they really wanted to do and then a Plan B, if things didn't go so well. Well, Kelly finally has some good news and they were able to do plan A and everything turned out as good as they had hoped.

Kelly had her largest tumor removed and most of her left hip (there wasn't much left). They were able to rebuild it and put her back together. She is going to be able to walk again and most of her pain should be gone. She's getting some quality of life back. You guys really have no idea what a struggle this last year has been for Kelly, just to go to the bathroom was a major struggle, she had no quality of life.

I am so happy and excited for her I don't know what to do. All I can say is thank you to everyone who has prayed for her and helped her through this.

She is going to have to wear a brace for about 12 weeks, and I'm sure she will start complaining about it, but she is so far ahead of where she was, it's like she's ready to run a marathon.

Thanks again to everyone for their prayers, they really worked.

David

Friday, November 2, 2007

Finally – a plan!

Hello from MD Anderson! We received the long awaited call from MD Anderson on October 22 asking if we could be in Houston for an appointment two days later. Obviously it didn’t take much thought to answer YES to that question. Char jumped into action making all the necessary travel plans and so it was with great relief mixed with a little apprehension that Char, Marla & I met at the Houston airport on October 23.

Early October 24, the three of us met with Dr. Lewis who is Associate Professor of Surgery, Oncology and her team. In all my years of going through brain tumor surgeries, radiation treatments, chemo and the rest with some of the “BEST” doctors in California, MD Anderson and this team of doctors has by far surpassed all I could have ever hoped for. Not only is their expertise in dealing with this disease amazing, but more importantly they have given me hope. For any of you that have not watched the TV series, HOUSE, you really need to. My sisters & I have spent a lot of time laughing over how surreal this all feels and wondering if this might be a taping for HOUSE.

October 24 & 25 were spent in the hospital going from test to test. Everything had been scheduled and I was never kept waiting. The people here are professional, efficient, caring and kind. It was such a great experience to face the scary unknown of a new environment with people that were smiling, friendly and had us laughing.

The next step was to wait until my case was taken to their weekly review board which was held on October 30. We decided to just wait it out here in Houston hoping things might be approved quickly and move forward with a plan for my healing. On one of those waiting days, Char decided we needed to get out of the hotel and enjoy some Texas air. Even though I can’t walk and could barely hold my head up my two sisters poured me into a wheelchair and took off walking. We ended up miles away & did some shopping while sipping on a Starbucks. We finished the evening with a wonderful dinner at a local Indian restaurant. We had to take a cab back since it was dark by then, plus I didn’t trust Char & Marla to find their way back in the dark.

October 31 we received THE CALL! Dr.Lewis let us know that not only was I a good candidate for hip replacement surgery but the team had also come up with an overall plan for my health & welfare. All that to say, I will be having my hip replaced on November 12. Now, I am sure this is going to open me up for plenty of teasing from family and friends. Bring it on cuz I am pumped and ready!

With traveling being so difficult on me right now, Marla & I have stayed put in Houston while Char returned home to help Bob find missing work files. Seems after 38 years of marriage he falls apart when his little wife leaves town. In all fairness, Bob did tell Char she could stay longer since he has pictures of her to look at.

David is busy opening store #3 so I told him to hang tight in Salinas since Marla was here with me. We talk everyday and I sure do miss his face. I should have brought a picture! My pre-op appointment is set for November 7. Char, David, Kathy & Theresa will be flying in on November 10. Since Char has such a major phobia when it comes to flying we thought we would send her in a group this time. She seems to think the plane will only go down if she is on it alone with strangers.

Enough about me. Here is a quick update on my friend Nicole. After having to evacuate her home during the California fires, she and her family are safely back in their house. Our prayers have been answered and we are thankful.

Thanks again for all the cards & letters. I will try to be better about updates but remember you can always reach out to David, my sisters or Theresa.

God bless ~

Kelly

Tuesday, October 2, 2007

It’s About Time…………

For an update! I know many of you are wondering why it has taken so long to update “the Blog” so I will try to summarize as quickly as possible. In a nutshell, it has been a rough month+ since I finished the last round of chemo. I haven’t been on email very much lately and hope everyone can understand if I haven’t returned a call or note(s). I have not felt good and have been working on my recovery which includes sleeping & radiation therapy.

The last round of tests, MRI’s, Scans, and X-rays prompted the doctors to advise me to prioritize my healthcare; 1) consult with an Orthopedic Surgeon specializing in oncology for a possible hip replacement and 2) review the tumor in my right chest wall for possible radiation.

1) David, Theresa & I went to UCSF last week and saw the Chief Orthopedic Oncology Surgeon. Although Dr. O’Donnell has excellent credentials, and had performed hundreds of surgeries, he has never done this surgery. This is a very vascular (bloody) surgery which makes it much riskier. After “family review”, we are going to pass on UCSF. Marla & Char think they may have located a doctor out of Boston who has done this exact procedure, so that’s there homework this week.
2) Thursday, 9/27, I finished 12 days of radiation treatment to reduce the tumor size in my right chest wall. The good news is everything else looked good from the last set of tests, and this radiation hopefully gets me one step closer to remission. In the mean time, the treatment has made me really fatigued, nauseated, and dizzy and all the other fun things that come during recovery. My Radiation Oncologist is working hard to dissect many of my pending problems; for example changing medication dosage. Dr. Fischer has also referred me to an Ear Nose Throat specialist, who I will see on the 10th , as there is a possibility I could have wax build up from years of radiation treatment, which can throw off your equilibrium. It would be GREAT, if for once the solution was that easy – my fingers are crossed and daily prayers are said to unclog my head!

Other than working on these health priorities, Char & Marla are still working with the people at MD Anderson as there staff of doctors, nurses & admin gather and review all of my files – it’s HUGE!

In addition to keeping busy with me, David has just opened his second store while he is working on the third store to open in 2008. Thanks to Char & Gina who came up to stage “decorate” for the soft opening and wrapped 200+ giveaways for the Grand Opening scheduled for the 26th & 27th of Oct. Thanks also to Karen & Theresa who came up a few weeks earlier to deliver decorator product they had picked up in so Cal and delivered for the opening of Store #2. Thanks again, we couldn’t have done it with out you!

My eyes are starting to get heavy – must be getting close to knap time. Right now I must stay off my left hip as much as possible, so my days are spent trying to rebuild my energy level and making sure I don’t damage the left hip with an accidental fall, etc.

Please feel free to call David, Marla or Char for an update while I am working on my road to recovery. Also, know that I think of all of you and appreciate the prayers & letters. I look forward to when I am feeling better and will be able to “entertain” or see you soon!

God Bless – My Love to All,
Kelly

Friday, August 10, 2007

She's Feeling Better

Well, she's bossing me around again, so she's feeling much better. She's telling me to update her blog and let everyone know she's not dead. Kelly really didn't like the tone of my last update(neither did Marla), so this will probably be my last update for her. I'm fired.

A lot of people have been very concerned since the last post, understandably so. Well, turn your concern meters down a notch, Kelly is feeling much better. The seizure just scared the crap out of both of us and it took her over a week to recover. She's recovered and has a list of projects for me. Funny how that works.

She's planning on having her nails done today, if that's any indication.

We're scheduled to see the doctors at UCSF on 8/22/07 and we're planning on taking her to MD Anderson in Houston. We don't feel the doctors here are paying that much attention to her case. There is no "project manager" and too many things fall through the cracks so she fired them. Funny how their level of care and follow up has improved since we told them we're leaving.

Email is the best way to communicate with Kelly, she enjoys spending time on the computer. Her email address is kcsewart@yahoo.com.

We really appreciate all the support and are thankful for everyone.

David

Sunday, August 5, 2007

Update by David

Since it has been over a month, I thought I would update her blog. Kelly really enjoyed July with her family. Marla and her two girls stayed the entire month, while Amy and her new baby and Molly and kids stayed two weeks. Thersa, Karen,and Judy stopped by for a couple of days along with the oldest sister, Charlene. The cousins, Cher and her daughter stopped in for a long weekend. They stayed very active, going to Cayucus for the 4th, the Salinas Wildlife park, the aquarium, the train in Santa Cruz (twice), San Francisco and numerous trips to the mall. I don't know how she did it, every body was worn out. Kelly's health started to decline about a week ago. She had a bad seizure last Wednesday night. While her "normal" seizures last anywhere from 2 to 5 seconds, this one went on forever, about 4 to 5 minutes. You know how good she is in handling whatever comes, but this was scary. We called 911 and an ambulance took her to the hospital. Since she just had a CT scan and MRI, they really couldn't do much at the emergency room and let her go home after about an hour. She's been sleeping ever since, not feeling good. If she doesn't answer the telephone, it's nothing personal, she's just very tired. We're scheduled to see more doctors next week and we'll see what happens. Please pray for her.
David

Sunday, July 1, 2007

A Political Statement for July 4th - Retraction!

If anyone read the original "Statement" posted earlier today - it has been officially RETRACTED! Mr. Sewart took the liberty to masquerade as me behind my BLOG - I think we should limit this space to more meaningful conversation like staying healthy, playing with our animals(which I did today!), and looking forward to seeing the family on the Fourth of July!!

Here's a quick update on my health - I was in the hospital for 7 days and finished Round 4 of my treatments 2 weeks ago. It was a bit rough this session, as the doctors had warned that every Round can intensify in terms of how you feel. Unfortunately I wasn't feeling great in this round, however, it's behind me and I am just looking forward to positive results! Posted around my house on mirrors, frig, etc., I have some goals: 1) Remission - End of Summer
2) Ride Harley - Fall
3) Return to Normal - Thanksgiving
4) Christmas in Oklahoma

Next my doctors will schedule a PetScan to see how the treatments worked; probably end of July, early August as it takes several weeks for the medicine to completely go through your body. Since Marla & family will be here the month of July, I will try to push everything out to August anyway!!

Speaking of Marla - they should arrive sometime tomorrow, I'm not sure when? Not to say I'm excited, but I have a vacation calendar that I printed out with gueast arrival & departures and the daily activities. David says a vacation should have no agenda. I think we at least need some "guidelines". This should be an interesting month trying to wrangle 10 people in to a schedule. Stay tuned!

Hope all is well with you and your families. Happy Fourth!!

Love,
Kelly

Sunday, June 17, 2007

Ding Ding – Round Four is about to Begin!

On Monday, June 18th, I will start Round 4 of chemo. It is supposed to be 5 days in the hospital, 24/7, however, past experience has set my expectations at being in the hospital at least six days. I am keeping my fingers crossed that I will be home sometime Saturday night.

If you read Marla’s “comments”, you know that she and two of her girls (Liz & Miranda) are coming to visit in the month of July. I am hoping I can convince my doctor to minimum appointments this month and really have July as a vacation month to entertain, visit with friends & family and tour all the central California sites; from Big Sur, to driving through the Red Woods. When I told David I was taking the month of July “off” as vacation, he said I had been on vacation since I have not been going into the store to work. I quickly informed him the last nine months were no vacation – hahahahaha! Besides, I work all the time as a consultant to him – we all know that behind every good man there is a better woman. Anyway, point being I am hoping for as much of a non-medical month as possible, we’ll have to wait and see…….

Today is packing for the hospital – I told David I felt like Paris Hilton going to lock down for a week! I shouldn’t complain, at least I only have 5-6 days in the “cell!” and we are always looking forward to the positive results from the treatment.

I am sending my best to each of you and your families – Have a great 4th of July. As I said in a previous blog, the place to be on the 4th is Cayucos. If you can make it, we'll see you on the streets of Cayucos by the Sea!!

Love,
Kelly

Monday, June 11, 2007

The Results from UCSF – June 8th

Finally, some good news from UCSF! This Friday, June 8th, David & I met with Dr. Susan Chang and one of her associates. After reviewing my Brain MRI from December to the most current scan of 5/1/07 the doctors believe the tumor has shrunk, therefore we should proceed forward with Round 4 of Chemo. In addition, Dr. Chang would like a full scan (to review the brain, hip, lung, & spine) and a few weeks after this treatment, if all is going well, they would like to add a 5th Round of treatment. The bad news is more Chemo – the good news would be, if they want Round 5, the Chemo is working.

The other piece of good news is that the doctors say I can start being weaned off the steroids (hip hip hooray!) and trying to reduce some of this 25 additional lbs I have added to my frame! Unfortunately, every time I have chemo I have to start the steroids again and the weaning process will start over. Welcome back Puffer Fish!!

At this point I am just waiting for the shingles to clear up which we are hoping will be within the next few weeks before I can start Round 4. I am also still being monitored weekly for the blood clots in my legs which are controlled by meds and will not defer any treatment. I hope I will have Round 4 finished before the Fourth of July as we are planning to head to Cayucos for the parade and town celebration!

So, as you might imagine, David & I were very excited about the news on Friday, and think we are headed in the right direction! David even took me to a nice lunch on the Wharf after my appointment and then wheeled me around in my wheelchair to see the baby Sea Lions! It was a Good Day!

Of course I know I have God to thank and most of my friends and families prayers to help through this challenge. Thank you AGAIN for your thoughts and keeping me close to you. Right now I still have some limitations with my walking and I have not driven for 7+ months, however once my overall health starts to get better, I will start to work with the physical therapist – my first goal being to walk without a cane, and being able to ride on the back of the Harley again by the end of summer!

I also look forward to getting back into physical and mental shape over the next several months, reducing the amount of medical appoints I have had, and being able to see and or talk to many of my friends/family that it has been difficult to connect with because of some limitations.

Hope all is well with you and your families. Have a safe, FUN, and happy 4th of July! If anyone is around the coast – there is a great Parade and celebration in Cayucos and there will be plenty of us to entertain each other!!

Love,
Kelly
Cell# 714-329-4895
Home# 831-449-3776

Sunday, June 3, 2007

It’s a Good thing I Love My sister so Much!

Marla, Marla, Marla, yes I love your witty writing, however when the “victim” is moi, it doesn’t seem quite as funny. Hahahahahaha! I believe I asked my lovely sister to update my Blog (see her comments posted 5/25/07) since our internet service was down for awhile thanks to country living in Prunetucky! Truth is that everything Ms. Marla wrote is “write on”, she said it with humor, and still got her points across – the best part of her penmanship is that I laughed, and yet by the time I was done reading the final lines she had me in tears. Thanks Marla, for keeping everyone updated on my medical condition, SIZE 9 (UGH!), and my recent addiction to Ben & Jerry’s! Of course, I am sure it is the STEROIDS, as my doctor has assured me that once I am weaned from them I will no longer look like a, as David affectionately calls me, “Puffer Fish”. Although this challenge is UGLY, David’s honesty keeps me laughing and with a positive attitude.

Now for the current update.

A quick recap; I was in the hospital for my 3rd round of Chemo 5/8-5/13 and was then extended an additional 2 days in the hospital when diagnosed with blood clots in my left leg. Of course, I was going absolutely STIR CRAZY and just wanted to go home, so after 8 days in the hospital, 24/7 IV hook-up, and constant nagging to let me recover at home (feet up until the blood thinner kicks in & the swelling in my once ankles, now cankles is gone) the doc released me. I did have to have a Nurse come to my house for the next 4 days to administer daily stomach injections for the clots, which David insisted he could actually do – I, however, rejected his kind offer. On day one with the Visiting Nurse, I complained that my right arm was bothering me. She told me it was in my head and that the legions on my chest were a reaction from the tape they had used in the hospital, and it was nothing serious. A week later, my Oncologist sent me to the Regional Wound Center, and I was diagnosed with Shingles. BTW – I should have known I could not trust the Visiting Nurse when she told me she might not be able to draw my blood because her eyes were bad, and she thought I was lying about my weight! It went downhill from there when she asked me to hold the tube as it filled with my blood. I could go on, but I think you get the Visiting Nurse Saga……

I am now scheduled for an appointment with Dr. Susan Chang @ UCSF on June 8th to review status. David & I anticipate, based on past experience, she will review the prior two MRI’s and scans and then tell us to proceed forward with Round 4 of Chemo which has already been advised by my local Oncologist and my Neurology team from Hoag/Newport. In the mean time, the doctors and I agree we do not want to start Round 4 until the Shingles are physically “clear” which should be mid to late June. Of course, I am anxious to complete this round, start the steroid weaning process (weight reduction), re-growth of my hair (oh, how I’ll miss my wigs, NOT!), and start getting back to NORMAL. Whatever Normal is, David & I are so ready!

On a more personal note, Marla and Bob are bringing Liz & Miranda to California for a month to do the tourist thing. They are driving out with their RV and will be stay at a local campground. We are excited to take the girls to the Aquarium, Cannery Row, driving the coast, San Fran, etc., all the sites Mom took us to on our annual vacation. One of the highlights this summer will be the 4th of July in Cayucos, as Amy (John’s wife) & new baby, Hannah Kelly are coming to visit, as well as, Molly (Matt’s wife) & children. My best friends, Theresa & Karen will be here also, so the 4th, God willing, is going to be filled family and friends and I am sure lots of LOVE, FAITH & HOPE for the rest of the year. Also if you could, keep Matt in your daily prayers, as he has been deployed back to Iraq. We are praying for his safe return, scheduled currently for December, 2007.

On a final update, the picture I recently sent out, although not great, was just to prove that I have not always been a “Puffer Fish”, I just had to trump Marla’s Blog report

Stay safe & sane during the upcoming Holidays – once again I send my Love to you & your families.

Love always,
The Puffer Fish

Monday, May 7, 2007

Hi Ho Hi Ho, It’s Off to the Hospital I go…..

Here is the latest “medical” update – My Oncologist called late Friday, 5/4, with the results from the Brain & Spine scan I had on Tuesday, 5/1. The doctor was pleased that the brain scan looks very good, and in fact, may show some shrinkage in size. As far as the spine, the oncologist wants my Neuro-surgeon to review the scan, however it appears the compression fracture on my spine is probably the cause of my intermittent dizziness. Bottom-line we decided this is not a reason to postpone the 3rd round of chemo.

I was told to show up at the doctor’s office on Monday morning (today) at 9:00AM, and as long as my blood work came back okay I could be admitted for the next five days. The upside is my white cell count was right on, however, I am anemic and had to get a “booster” shot to get back on track. Although my suitcase was packed & in the car, they sent me home until tomorrow when I will start my 5-6 days of treatment. I’ve got my Ipod, books, Bibles, To-do Lists, etc. and I am ready as I can be to be locked away for the next 6 days!

BTW – I’m a new “Great” Aunt this week! John and Amy (Marla’s middle son) had their baby girl, Hannah Kelly, on Sunday, May 6th. And of course, Marla’s oldest daughter Rachel had her baby, Corina Aleze, last month. Congratulations to the Hansen Grandparents – they did good AGAIN!!

Also, Marla & Miranda left this morning after a ten day stay with me. We had a great time together, and they were a lot of help while they were here. My cousin Cher (what a fantastic cook!) came to visit for the weekend and my friend Pam, who is now living in New Jersey for work, also came to visit this weekend. We had a fun “girls” weekend – with David!

That’s all the update for now – I’ll be off the net for the next week, as the hospital does not have internet access (OLD SCHOOL!!) so I will send an update upon my return.

As always, I send my love and best wishes to you and your families as I think of each you often.

Love,
Kelly

Friday, April 27, 2007

Happy Hour with Char

Although I was waiting for a little more news, several of you have been requesting feedback, so let me tell you what I know so far…

As you know, I had a Pet Scan (those animals are so smart!) last Friday and then went to the doctors on Monday, 4/23, for the results. The GOOD NEWS is there has been no growth since we started treatment and therefore we will gear up for the 3rd round of chemo over the next 5-10 days. In order to prepare for this next round, I am scheduled for another echo (checks the heart), and an MRI on my brain and spine next Tuesday because my balance has been off (like me!). Once the tests are back, the doctor thinks the treatment should resume early May for 5-6 days in the hospital.

In the meantime, Char came to visit! Yes, my train visiting sister came for a few days last week, although, I wasn’t sure it was her at first. When David picked her up at the station, she had had three drinks, (which for most people is like a case of beer!), and boy was she fun! So, the rest of the week we kept giving her cranberry & vodkas, which made her fun to be around, however we were eating dinner really late and Char was in the most kick-back mode I’ve ever seen!

Marla is here now, with her youngest, Miranda, for the next 2 weeks. She is helping get some things done before my next “stay” in the hospital”. I’ve been trying to get a painter to come to the house for the last few weeks which has been like pulling teeth, and she is assisting with some normal admin stuff. I think I hear her make little comments under her breath about my “A” type personality, but overall, she carts me around and does her chores with a smile! Seriously, David, and my sisters, have once again saved me from insanity.

Andrew, Marla’s youngest who lived with me for a few years in Newport, is coming to visit this weekend. It will be nice because he will be able to see his mom and Aunt at the same time. He is living in Irvine (southern cal) and just recently got a promotion at a bank into Info Tech (a real job!). California has been good for Andrew overall, he hasn’t crashed a car and seems to fit in well to this lifestyle.

I wanted to wish my cousins Xochi & Jon Congratulations on their wedding this Saturday, April 28th! Relax, enjoy and have a long healthy, life filled with love and joy!

God Bless to my friends & family

Love,
Kelly

Monday, April 16, 2007

A Silver Lining

Well, we did it! Yes, originally engaged in November, 2005 in beautiful Cayucos, CA David and I decided not to wait for a big party and tied the knot this week at a private ceremony.

It was a lovely setting overlooking the ocean in a quaint Bed & Breakfast in Pacific Grove. The room was beautiful, filled with antiques, fireplace and romance. The only thing missing was a T.V. (ha/ha/ha) which you shouldn’t need on your wedding night, but you sure get used to it in “real” life! (Yes, we broke down on our wedding and went to the TV Room to watch American Idol on our wedding night!) Let the record show, I asked David if he wanted to marry a blonde, red head or brunette and he chose a brunette. It would not have been my choice, but, he’s been such a good caregiver, I figured I should let him pick my hair for the day! He’s the been the best!

I have nothing to update on my health until my PET scan this Thursday, the 19th and the results from the doctor on the 23rd. Your thoughts and PRAYERS continue to help me remain strong in my faith, hope and love.

As always, I send my very best to you and your families,

Love,
Kelly

Wednesday, April 4, 2007

It was a LONG Five Days.....

…….that turned into Six! But I am home, and thanks to Char who spent Monday thru Wednesday with me, and Theresa & Karen who spent Thursday thru Saturday with me, WE did it! It was definitely a Team effort. Of course, David came too, but the girls were “living” the confinement to the 5th Floor - Cabin Fever is not pretty after about Day 3 with this girlfriend! I got home at 9:30PM Saturday night and have never been happier to see my house, animals, bed, etc.! Other than that, everything went fine. I got the Nulestra shot on Monday to control the white blood cell counts, which to-date have been right in line with what they should be.

I am now scheduled for a Pet Scan (PT) on the 19th and will get the results on the 23rd. My understanding is the chemo is working its magic over the next few weeks and the PT will show the current results. The Dr. will then recommend the next form of treatment based on those scans, ie additional radiation, surgery, next round of chemo, etc.

But I think I have it better than Marla right now and the demands of Mr. CFC! Dad has “reincarnated’ and back to his demands. She keeps me in daily giggles with her Daddy stories (I’m just wondering if I should report her to the Old Folks Agency when she tells me she drugged him because he was being so bad!?!) I miss arguing with Dad about his car keys, taking him to the casino and “needing to talk right now” but yes, I have passed the baton for now. Marla & I had a recent idea to send Dad to the valley with Sister Char! Hahahahahahahahahahahahahahahaha! Sorry, I lost my head for a minute!!

Life at the Sewart Zoo has been good. We are trying to teach Bailey Bird to say “Thank you Jesus” which is the Sewart House Mantra. Bailey is still a baby and her vocabulary limited, but we’ll get there! I figure, everyday we open our eyes in the morning we should say “Thank You Jesus!” cuz it’s a good day! It is so fun being around this talking bird and listening to her talk. Marla also has an African Grey she is training – we have a good time comparing “bird” notes! Dogs & Cats are also doing good, Gwen.

Also, before I close I wanted to respond to my good friend Nicole who I love dearly. You are the cutest city girlfriend I have ever had! Roosters crow – chickens lay eggs, any questions? (Nicole wrote on the blog 3/31….the chickens! I remember the first time I went to your parents house for our work Christmas party and I spent the night there and was awoken by the darn chickens because someone forgot to put the blanket over them or whatever it was to keep them from waking at the crack of dawn. Or was it roosters?!)

And BTW – that was a GREAT party hosted at the Casas house! Those were FUN times in Fullerton!

And so I leave my friends and family until the next update after the 23rd. My very best to you and your families. I think of you all often, and as I am in your Prayers, you are in mine.

Sending my love,
Kelly

Friday, March 23, 2007

Round Two - Let's Get to REMISSION!

After my minor set-back I am scheduled for the next five days of treatment starting this coming Monday, (3/26-30). For my benefit, my doctor has convinced me to do the treatment in the hospital so I can be watched more carefully 24/7 to ensure I do not get another infection.

Char is coming to spend Monday-Wednesday with me until Thursday, when Theresa and Karen will come for the rest of the weekend. Of course David will be in out of the hospital the whole time, as always. I figure the girls are coming just so I don’t try to escape to Starbucks again or give the Nurses and Aids too much grief. Seriously, it is so great to have David, my sisters & friends at this time – they are my rocks.

BTW – in the midst of all this, David decides to “do the right thing” and rescued a dog. So now we have a new addition, Mr. Buster Brown, a short legged Bassett Hound, just like the dog from the advertisement! His legs are about 6” from the ground and his ears are bigger than anything I’ve ever seen! He’s not pot potty trained and doesn’t have very good manners, but its David’s first rescue (YAHOO – welcome to the Casas/Walter family.) I am very proud of David who walks the boys daily, had a house built for them, and spends at least 1-2 hours “playing” with the dogs. He’s a great dad. Also, Jack, the Labradoodle absolutely loves Mr. Brown. So, I suppose now with three cats, two dogs and a talking African Grey Parrot, the family is complete. Please David, no more animals – at least for awhile.

Thanks again for all your support – especially the PRAYERS that are getting me through this challenge. I know I keep saying this, but it truly is my family & friends and your love that keep me strong.

I send my very best to you and your families.

Love always,
Kelly

Saturday, March 17, 2007

A Slight Delay

Here is the latest from the Pittner/Sewart Camp. Unfortunately I had a “mild” set back after the first day of chemo. Evidently one of the potential side effects of the types of chemo I am taking is burning of the bladder and, yes, I got a very mild case. Of course, my doctor said in 23 years not one of his patients has ever had this, but guess who the lucky charm is? Kind of like my benign meningioma that had less than 1% chance to metastasize? Marla says we should take tottery tickets and rub them on my head and we could probably win BIG BUCKS! Of course I’ll have to charge a small service fee like the liquor stores to the grand prize winner! :)Anyway, I ended up in the hospital for one day for observation and to run fluids through my system for 48 hours and was home by mid afternoon Wednesday, feeling fine.

Marla & Char came to visit on the 8th to make sure I was behaving, and Andrew drove up over the weekend to drive Aunt Char home, because as we all know by now – she won’t fly! I had an MRI on Monday, the 12th and the doctor said they do not see any change from the scan on 1/22 which is good news. The MRI is only a scan of the brain and does not reflect other parts of the body. They will not scan the whole body until after the second round of chemo, which at this time has been detained for about three more weeks. I have an appointment with my local Oncologist this Tuesday,3/22, to review everything; he’ll also discuss his consultation with Dr. Chang from UCSF with me at that time.

I am anxious to get to round two of chemo, however, I understand the doctors are being cautious with this chemo as it is one of the most toxic available and they are concerned about potential side effects. The good news is all my vitals are really strong! When I went for day one of the second round of chemo, all my counts were – “GREAT”. I am anxious to meet my REMISSION goals and get my medical stuff behind me for this year (to say the least). As they say “patience is a virtue” and I am trying to be very virtuous!

Marla left this morning to return back to Oklahoma. We had a nice visit this trip and look forward to her return in the summer with her girls, Liz (17) and Miranda (9) for vacation.

Thanks again for checking in on me, I appreciate every prayer, thought, card, e-mail, etc. It absolutely feels incredible to know how many people are walking with me as I face this challenge and how each of you have touched my life in some way. Thank you for being there, my family & friends - I love you!

Happy St. Patrick’s Day to everyone – Be Safe and don’t drink & drive on Green Beer or whatever is your holiday pleasure! HAVE FUN!

Love, kisses & my prayers to you & your families,
Kelly

Friday, March 2, 2007

Don't Call me Brittany.....

Another busy week here on the central coast of California. Sunday, 2/25, I started to lose my hair. Since I was told it would clump out over a period of time, I decided to make the transition quick and have David shave my head on Monday. As many of you know, he shaves his head weekly, and I must give him credit, he did a pretty good job, considering the circumstances. I do however have one question? I have been a redhead for about 15+ years, prior to that I was a blonde for about 20 years, but where are these BLACK roots coming from? Theresa just keeps wondering what my hair is going to look like when it grows back – that makes two of us! On Thursday I also attended a “Look Good, Feel Good” course sponsored by the American Cancer Society that essentially shows women in chemo what face care products to wear and fits you for wigs. David had dropped me off at the cancer center as a short-headed read head and when he picked me up I was a Blonde (which he had never seen!). Moral of the story – next time you see me – you won’t know what color, length, style, with/without hat I’ll be wearing. I’ve had to make bald an accessory!

I met with the Oncologist on Tuesday to review the next round of chemo treatments. After a small struggle with the Doc to have the treatments as an outpatient, and with the total support of the Oncology Nurse, we were able to convince him of an acceptable in-home schedule vs. a five day hospital stay.

I will start my second round of chemo this coming week for five days – March 5th thru 9th. I go to the clinic everyday from 8:30-12:00 and then return home where I will be on a home IV for the next five days, 24/7. The good news is I only need to spend a few hours a day at the clinic and I get to sleep at home! I also had an echo (stress test of the heart) today to ensure the last round of chemo was not affecting my heart since that is one of the possible side effects. I have not heard from the doctor’s office to make any changes to my treatment, and the tech told me he did not see any differences, so I think we are full steam ahead for Monday…….

Wednesday, 2/28, was the five year anniversary of mom’s passing – we still miss her dearly. Dad has good and bad days. The upside is that he is not in any pain, the down side is he doesn’t live in reality but I guess that’s okay at almost 87 yrs – we’re just glad he doesn’t suffer. Of course, Marla is a SAINT. Her family does a great job too.

Thanks AGAIN to everyone who continue to send their PRAYERS, cards, and letters of encouragement as this is why I am going to make my goal to remission! I love each of you and send my heartfelt appreciation.

God Bless to you and your families,
Kelly

Sunday, February 18, 2007

It's GREAT to be Home!

Hello my friends! It's Sunday afternoon and David & I are waiting for the arrival of my lovely sister, Char, on the 6:30PM "train" so I thought I would update the blog in the mean time. (Yes, crazy Char takes a 7 hr train trip vs 1 hr flight as she does not like to fly - she must really love me - as I do her!)

Where do I start? As you know Theresa was here to hold my hand in the hospital and much more but I'll leave out some of the details, and she was TERRIFIC! She took care of me as if she was my personal nurse - she is my hero, but after being best friends for 37 years I think everyone knows that! Of course, we didn't go without getting into some mischief. We were so bored we went to the gift shop and got yelled at for being on a cell phone and then went to the Starbucks (yes, it's in the hospital) and were reprimanded because they will not serve patients and I was not supposed to be off my floor. Theresa then proceeded to tell them the other drink & pastry was for another person or they would not sell it to her for me - we got a good laugh later as we shuffled back to my room. It made me think of our first job together at KFC at age 15 1/2 and the initial, accidental, commotion we stirred when we tried to make our first batch of mashed potatoes - it was straight out of and I Love Lucy episode. BTW - this was all on day 1.

As far as the treatments themselves, it's just a long and boring day. Unfortunately the kind of chemo I am receiving is very intense and therefore there are several pre-meds & post-mosts and therefore it takes about 12 hours for the entire process. It doesn't hurt because I was on an IV through the port-a-cath for the entire 5 days, however, as many of you know, being in the hospital is not very fun - yes, I wanted to go home. Theresa & I took our daily walks, played cards, read, talked and made the very best of our stay at the "Hospital Hotel". The good news is I was released on Friday night at about 9:00PM. I slept like a baby that night - there is nothing like sleeping in your own bed.

As you might know, chemo kills cancer cells, but it also attacks a persons good cells. So today I had to go for an injection that will help to keep my white blood count up. So far I have had limited nausea (knock on wood) and am taking a pill to help calm my tummy. The injection I received today can cause flu like symptons for a few days which would start over the next day or two, however Char & I have plans therefore I do not & will not have time for the flu!

The doctor is talking about my next round of treatment in 3 weeks - which would be around the week of March 12th for another 5 days. I told him I am ready but have requested this treatment on an outpatient basis. Basically I will go to the chemo clinic first thing in the morning and stay all day for treatment, returning daily Monday thru Friday. They will be long days, but I will get to go home at night. I feel good about this decision and will confirm with the doc at my next appt.

Other than that, I am anxious to get back to regular life. David has been incredible through this entire journey. He has been my daily caregiver, which I know is not an easy job. I have tried to maintain some sense of "regular" when we are at home and continue to cook, which I love to do, laundry (ugh), and regular house stuff. I just can't wait to get back to work at Aaron's as I was enjoying our business - and as most of you know, I just love to work. David & I have been together for 6+ years, got engaged in Nov 2005, and are looking forward to our nuptials as soon as I can get it scheduled. :)

Thanks to everyone who responded to my last update. You touched my heart and brought tears to my eyes. I know in my heart I am being healed by the power of YOUR support that has included so many prayers. To be in your prayer groups has overwhelmed me and I want to thank you again. I don't want to say this experience has changed me, however, I continue to evolve especially with my relationship with God. I will continue to learn and grow through this experience.

I hope each of you & your families are enjoying month two of 2007. Until the next update I send my love to you and your families.

Love,
Kelly

Saturday, February 10, 2007

5 Day Treatment Scheduled (2/12-2/16)

Thought I'd take a quick moment to update yesterday's visit with Dr. Chang, @ UCSF. Overall the meeting confirmed that the other Neuro Oncologists were planning the right treatment, however, I now feel more comfortable after talking with Dr. Chang as she has seen the "whole" picture (from my brain tumor to the metastasized tumors).

In conjunction with my local oncologist, they have a final chemo treatment plan, which unfortunately increased the number of days in the hospital from 4 to 5. I will enter on Monday 2/12 and go home on either Friday or Saturday depending on what time they actually start the chemo Monday. Evidently there is a shot I must receive after the final treatment, 4-8 hours at the end, that will determination my release time. My fingers are crossed for Friday!

As I said, I'm looking forward to Therese at the hospital Monday thru Thursday. There's a Starbucks in the facility and we are hoping for daily Chai Tea's & our Soap Opera's (I recently got re-hooked on All My Children after xx amount of years!) Also, Char has decided to come to visit me the following Sunday since I am told, if you are going to get sick, it usually occurs 3+ days after you return from the hospital. Since Char's stomach is about as weak as mine (very) I thought that was very sweet - last time I was sick she just kept trying to do my hair and put make-up on me! Everyone has there place, her's is making sure you look good. She's great.

I'm not sure if I will have Internet access from the hospital, or when I will be up to the next update, but know that I am thinking about all of you and THANKING you for your PRAYERS and thoughts that get me this daily routine.

Love to you and your families,
Kelly

Wednesday, February 7, 2007

Getting Ready for Treatment......

Hello my friends and how was your day today?

As most of you know Char, Karen & I spent the weekend with my dad. Sadly his health is on a daily decline and at this point he can no longer walk and does not make much sense when he talks. However as Marla says, he is a fighter, and he wakes up everyday saying he feels fine! It was a physically challenging trip for me as the tumor in my left hip and the edema, which causes numbness on my right side, make it hard to walk. With all that said, although a very emotional trip, it was more than worthwhile to get see my dad and Oklahoma family.

The first day back from OK I had/have appointments getting me ready for the chemo treatments that are scheduled for this coming Monday-Thursday (2/12-2/15). Monday I had the Port-a-Cath interview, Tuesday I met with the Chemo Nurse to review the treatment plan and what to expect and today I had the Port-a-Cath Surgery. They inserted a port, about the size of a half dollar on my right side upper chest. You are wide awake during this "procedure", however they are kind enough to throw you some Percoset! Of course, what they do is numb the site, but you still feel the pressure as they are making the incisions/insertions, etc. To keep myself distracted, I talked to the doctor the WHOLE time. I quized him on almost everything, schooling, family, the whole thing - he probably wished I was sedated! Right now I am really sore on my right side which, according to the doctor should subside over the next few days.

My next appointment is this Friday, 2/9 at UCSF, with the Chief Neuro Oncologist, Dr. Chang, who I have been trying to get to see since early December. This is an important appointment because she specializes in malignant meningnoma's. The outcome on Friday will determine the final chemo treatment for Monday. (There are 100's of types of chemo's and at this point Dr. Chang could still make changes to the treatment plan based upon her review).

Theresa is flying in on Sunday and planning to stay in the hospital with me for the four days of chemo - we're ready to start the program!!! Of course Therese tell's me she is coming armed with a bunch of "projects" like knitting, etc., - sounds like work to me! David will also be there but can't spend the night as the Sewart farm (Jack the lovable Labradoodle, Bailey the African Grey Bird, & Bud, Mick and KC the Cats) all must be tended to daily.

Thanks again for checking in and I will update the blog after my appointment on Friday!

Hope you and your families are doing well. God Bless.

Love to all,
Kelly

Tuesday, January 23, 2007

A Slight Change in Plans

Over the last few days some things have changed in scheduling my first round of treatments & associated tests. After talking to my doctors we have collectively decided it would be best to go now to visit my dad in Oklahoma before I start chemo. Dad is almost 87 and on hospice due to his failing health. Although Marla, Char & I are sure Dad will outlive us all, I want to make sure I get to visit him within the next 6 months which would not be possible during my treatments, so I must make the trip right now.

Char, Karen & I will visit Dad and Hansen Farm for a quick trip Thursday, Feb 1st and return Sunday, Feb 4th. The port-a-cath interview has been re-scheduled for Monday Feb 5th and surgery for the cath insertion is now scheduled for Wednesday, Feb 7th. I will have to assume chemo treatments will begin sometime soon after the week of the 12th.

I did have my Echo last Friday, the 19th and an MRI yesterday on the 22nd and will get the results from both tests this Friday, the 26th. My fingers are crossed. :) for positive results. We are also still waiting for Dr. Chang, the UCSF Oncologist who specializes in brain cancer to schedule an appointment with me. She's at the "top" and has been hard to pin down!

I'm looking forward to seeing Dad & the Hansens, but not the "travel". Oh well, we do what we must for our loved ones.

I hope this blog finds you & yours in good health & good spirits and you are enjoying the New Year!

Take care and as I am keep HOPE, FAITH and BELIEF in your life!

Love to all,
Kelly

Thursday, January 18, 2007

Quick Update

Hello everyone - How was your week? I know this is the quickest "BLOG" update, however I haven't wanted to bore you with too many details until I knew more of the facts. Some of my friends have been very "persuasive" and want more information quicker, so I'll keep it coming but don't blame me if you start to nod off from boredom, my lids are already getting very heavy......

Looks like my tests are starting this week, with an Echo (ultra sound of the heart), on Friday, MRI on the 23rd, and insertion of the port-a-cath on the 26th. Basically I will be set for chemo once all this "stuff" is behind, or should I say, "inside" me?!? I am looking forward to moving FORWARD and getting the first treatment over so that I know what to expect over the next several months. Of course, I will keep you all posted.

Also, I wanted to let you know that when you post to this Blog it does NOT assign your e-mail address so I can not reply back to you individually. Several of you have requested I reply or that you reply to my personal e-mail. You can contact me at kcsewart@yahoo.com and if you want me to reply to you please email me or send your address in the blog. Thanks!

David & I are going to try to have pictures taken at the house with the animals over the next few weeks before I lose my hair. It should be quite a time wrangling the dog, bird, cats, and David together for a family photo. I have a feeling there will only be 2 in the picture - me & KC! Wish us luck - I think I'm going to need it, along with PATIENCE, and a lot of treats. (Maybe a Starbucks for David!)

Again, thanks for your interest and I'll let you know how next week goes.

My love to all,
Kelly

Saturday, January 13, 2007

Happy 2007!

It's going to be a good year! Because we have HOPE, FAITH and BELIEF.

David & I went to the doctors yesterday to review the results of the Pet Scan. The good news is the tumors have not grown since the last scan in October (yea!) and in fact I am feeling much better since the end of radiation treatment on th 22nd of Dec. The next plan of attack for the critters that continue to ravage my body is a battery of tests to make sure I am up for chemo. It will start with doctors at the Univ of SF to insure all the pieces of the puzzle (brain, hip, spine, etc) are being pieced together accurately. Looks like once they are insured I am "healthy" enough I will start a program of four days in the hospital of intense chemo, bet hey it is a private room with a promised view! The drugs will make a patient sick, however, if hospitalized, the doc says they can ususally keep this maintained. I will have the first two treaments approximately four weeks apart from each other followed by a scan to check status. There will be an additional two treatments scheduled, dates dependent on the scan results.

Yes, I will lose my hair. Now, if you you think I am going to be Melissa Ethridge, bald & beautiful as she was, WRONG! I will be the girl wearing wigs, cute hats, and motorcycle doo rags. And, like Farah Fawcett hiding out from the paparazi, I will probably just be staying close to home for the next year while my cue ball head tries to regrow some new hair!

A quick shout out to everyone who has sent resonse to the blog, cards, & letters. I have truly been touched by each & everyone of you. Unfortunately my health has kept me back from personally contacting you - but please know it means very much that you are thinking of me, as I am of you. Thanks to my friends from the past - I am touched. My family has overwhelmed me. All of my friends that have become my family over the years. I love you all. THANK YOU.

Side Note - Of course as you know David had a little cancer late last year (beningn) so last week he needed to folllow up by falling in the street and chipping his right ankle! Fortunately they only put him in a blow up cast and is able to drive since I am not. We are quite the gimpy couple. He told me on the way home from our "double doctor" appointments" we were preparing for old age!! David has a way with words - most of the time, not good :)

Again, thanks to everyone for your kindness during this period. I am strong mentally (most of the time) and will win the battle thanks to your prayers, my strong HOPE, and our belief in in the LORD.

My love to everyone,
Kelly